Download e-book Fiddlers Daughter - Living with Scleroderma

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I am an only child so I can't compare siblings. I have 3 sons 31 and 26 and no signs in them. I'm sorry to hear both you and your sister were both diagnosed with scleroderma! I was just diagnosed, but it seems strange that I was diagnosed with Reyauds 30 years ago as was my sister who is a year older and now my daughter who is I don't know what's in store for me but I hope my Sis and daughter don't get this disease. I was diagnosed with the same 10 years ago. Our younger brother has Ankylosing Spondylitis and youngest sister has not presented symptoms.

We have no knowledge of ancestors with autoimmune diseases and all grandparents were deceased before our parents married. It's a mystery to us. We're all in our sixties now. I have 5 sisters and 3 brothers. I have been diagnosed with scleroderma, my brother 1 year younger has the same symptoms but refuses to go to a doctor, my sister 2 years younger than me has problems which the doctors say are all in her head heard that one before?

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We all left the nest as soon as we could, so I'm thinking that it's crappy genes. Thank you all for all the information. I really hate this for my sister, but it does give the doctors a bigger picture to look at. Also based on what I am going through shows my sister that although a scary diagnosis there is treatment. I recommended for her to join this support group, it got me through the beginning shock, gloom and doom from reading up on all of this online.

Again thank you all for the information and support. Hi My half sister and I also have been diagnosed with crest she has had issues with her stomach since she was about 7 and I started to have issues with raynauds and stomach since I was My father had stomach issues and the skin tightening and also I believe raynauds but was never diagnosed.

Also my grandmother on my mom side was always having stomach problems and so we believe I got the double whammy as we say. I was lucky because since she had gone through a lot of the testing she was able to let me know what I am facing. My daughter is slowly having issues now too.

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Worst of all, my mother-in-law was diagnosed with it the last 5 years of her life. I dread it for my daughter and grandkids, all girls. Hi, my onset of limited Scleroderma was from losing my 6mth unborn child who was dead in my womb for 2 weeks intrauterine death and I had a bad infection in my womb after having him removed surgically at 25 years of age. My paternal twin sister whilst 8 months pregnant had Septicemia - an infection of the blood, also known as bacteremia or blood poisoning a couple of years later.


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She has a type of Rheumatoid arthritis cross over lupus and is on prednisone. There is autoimmune diseases in our family - Rheumatoid arthritis, diabetes and a form of Multiple sclerosis. So it is interesting to hear of others siblings being affected, as they say it is no real factor that it is related. But what would the doctors really know these days as 25 years ago they didn't know much when I got my diagnosis!!!


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